Friday, October 9, 2009
The Wait Continues
Last week, Kevin and I went to Johns Hopkins Hospital to attend the long awaited initial transplant evaluation meeting. Over a five hour period, we met with a nurse coordinator, nephrologist, dietitian, social worker, financial advisor, and the transplant surgeon. It was a long, intense day, culminating with a "blood letting." I was required to go to the Hopkins lab and give more blood than I ever had at one sitting! Fortunately, Kevin and I had eaten the sandwiches I'd packed just before I went to the lab to get my blood drawn. Otherwise, I fear I would have passed out!
We were told at this initial consultation that my case would go before a review committee for a final decision regarding my transplant. All of the medical experts we saw agreed a transplant was in order and the sooner the better. Now, it's a matter of waiting to see what further tests I need to undergo prior to surgery, determining whether my daughter is a match, and, if so, scheduling a date for surgery. We are hoping that all will go well and that the transplant can be scheduled before the end of the year.
Immediately after the evaluation meeting, I felt extremely nervous. Even though it was great to finally meet with the Hopkins staff and get a lot of our questions answered, this meeting brought it all home that the transplant is really going to happen...and soon. How soon, we still have to wait and see.
We still have matters of insurance to work through and must choose our provider carefully. That's one of the scariest parts. We have to be really careful of the choice we make to assure adequate coverage not only for the transplant surgery, but for the follow-up aftercare. After the surgery, I will be required to take a whole battery of medications for life to prevent rejection and infection, and, for the first year afterwards, visits to the doctors office will be a frequent occurrence.
My daughter went for her initial blood and tissue tests yesterday. In a couple of weeks, we should know whether or not she can continue to be considered for donation for me. So, once again, we anxiously await results that will determine our next moves in this process.
Desirae and I had the chance to talk a bit more about our joint effort in this process this past weekend when she came down from Massachusetts for a visit. She is facing this with a sense of calm and level headedness and is so supportive of me. It is of great comfort to have such a loving daughter who is willing to be there and give so much. And Kevin has been everything I could ever ask for, too - loving, supportive, and always there by my side. Even though my nerves are a bit frayed, I feel confident in what will be.
So, for now, we continue to wait...
Monday, October 5, 2009
Apples, Animals, and Asian Food
It was a picture perfect fall weekend. After picking Desi up from the airport on Friday night, we were in a whirlwind of activity. On Saturday, we toured our local zoo...always a fun thing to do, but especially fun when feeding the resident wildlife. Desi and I purchased a cup of the zoo's special diet pellets and found plenty of eager eaters!
We saw llamas, jaguars, tigers, giant tortoises, monkeys, and a whole slew of tropical birds on our zoo visit. It was exciting to walk the wooded zoo trails and discover what was awaiting us around each bend. Though small, our local zoo is a wonderful place to see wildlife up close. The crowds are minimal and the scenery is as pretty and diverse as the animals within.
Saturday, September 26, 2009
September's Song
A fun place to do both of these things is the county fair. Here you can hold on to vestiges of summer fun enjoying the rides, refreshments, and many sights of fair life - the farm animals, crafts, and bounties of summer harvests ... and at the same time look ahead to the arrival of shorter days and cooler temps, gleaning inspiration from the many exhibits for creative endeavors you too might pursue in the coming winter months.
At the close of the summer season, nature had one more surprise in store for us ... these lovely pale blue and pink morny glories sprung up around our pond. They may have grown from the wildflower seeds left over from packets we'd distributed as wedding favors. I'd strewn some of these flower seeds around the pond, not sure what might come up!
Wednesday, August 26, 2009
Passages and Pizza
I was told by well-intentioned relations if I wanted to hurry the process along, I should eat pizza. Yes, the zestier the better...but any nice, gooey, cheesy slice of pizza pie was the supposed key to moving things along! So, at nearly nine months to the very day, a pizza party was indeed my course of action...and, wouldn't you know, I went into labor that evening!
My beautiful daughter arrived in the world the next night...all 7 pounds 8 ounces of perfection - our bundle of joy. Seeing her for the very first time is the most precious miracle I have ever experienced...ever.
That day was the beginning of what I can best describe as a love affair - a love so deep and so enriching, a love ever-lasting. Being a mother is one of the biggest joys of my life - not the easiest portion of it, not by a long shot, but endlessly rewarding. I've watched my daughter grow from a helpless, vulnerable, totally dependent baby, to a little girl filled with curiosity and joy for life, only to evolve into an intense, driven, and, at times, cantankerous, moody teen, and then flower into a gorgeous, independent, extremely competent, loving young woman with a generous spirit and strong heart. I've beamed with pride, laughed 'til my sides ached, shuddered with anger, and, through it all, shared her journey every step of the way in awe of the life she was creating one step at a time.
This weekend, my daughter is headed for Massachusetts to start a new job. She goes well prepared with a Bachelors and Masters Degree in her chosen field of study and a wealth of life experience already under her belt. She goes with my blessing and with the confidence that a mother who truly believes in her child has rightfully earned. Last night, she came over for a final visit before starting off on this life venture. Our final meal together? Pizza :)
Thursday, August 13, 2009
Aerial Jewels
Monday, August 10, 2009
Jug Bay Wetlands Sanctuary
This past weekend, Kevin and I went off the beaten path to Jug Bay Wetlands Sanctuary in Lothian, Maryland, where my friend Susan works as a park naturalist. The sanctuary encompasses about 1,400 acres of freshwater wetlands, upland forests and open meadows that are situated along the eastern shore of the Patuxent River.
Temps soared into the mid 90s the day of our visit. It felt like we were in a sauna as we strolled around the marshland sanctuary. Susan led us down a wooded path called the "Otter Point Trail." At the trail's end, we didn't find any otters, but we did see a pair of ospreys and a magnificent great blue heron as they flew overhead.
Susan has many tasks as a naturalist, not the least is caring for the resident wildlife inhabitants. In the photograph above, Susan is checking in on an Eastern Box turtle. Susan's done extensive studies of the box turtle population in and around the Jug Bay Sanctuary. Her research provides a greater understanding of this dwindling reptile species and aids in protecting it.